journalistsagainsttb

Fusing journalism and TB – telling the stories as they are

A life set on hold for two years…The wait was worth it…

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Two years ago…

A’s father holds a picture of a vibrantly lovely girl in his hand and looks at it with a tinge of sadness in his eyes. The girl sitting opposite him is the same, but she is now merely a shadow of what she was in the picture.  A (24) is so wasted that the several layers of woolens she wears hang loosely on her frame. Her bones are thinly covered by skin and she completely signifies the proverbial ‘skin and bone’ simile. Her speech is interrupted by pauses, as she becomes short of breath very often. When she changes position, she grimaces because each limb of her body protests with pain.She doesn’t smile as radiantly, or so often anymore.  She has been diagnosed with drug resistant tuberculosis and has been on DOTS Plus for two months…

Today…

31.12.2016

Two years is a long time to set life on hold, as A has done. Over the last two years, while most of us were living lives full of change and activity, achievements and excitement and maybe trials and tribulations too, for this young girl from a small town of Karnataka in Southern India, time had stood still. Her days and nights stretched endlessly before her and she couldn’t quite see the road ahead because she was living in a hazy world of pain, suffering and hopelessness.

Her days seemed endlessly monotonous. Day after day, for over two years, she woke up to pain, toxic medication, suffering and side-effects. When she slept, she wasn’t sure of a night’s rest as she woke up most nights wanting to douse herself with cold water, so harsh were the side-effects of the medication she was taking for MDR-TB. “My body feels like it is on fire,” she said to me more than once. She was often on the brink and wanted to give up on the treatment and take her chances with death. But her parents, her ORW-turned-friend Nagarathna (who was always on call, be it day or night), and a few trusted persons she reached out to, ensured that every time she felt like giving up, she actually persevered.

One step at a time, slowly, aided a great deal by her own will to overcome, she gritted her teeth and went on… Till the day her doctor announced she was cured. It had been two years and a few months. She had gone from a mere 29 kgs to her present 40.5 kgs. Her appetite had picked up and suddenly, she found she wasn’t feeling so hopeless anymore.

‘A’ was bubbling over with happiness when I called to seek her permission to wish my readers through her story! She shared with me that she had begun working again, albeit from home; was riding her scooter; giving tuition from home and frenetically making up for lost time. She was eager that I appeal to others like her not to lost hope and to stay with treatment, however difficult it was as the end would be happy! She has also assured me that she will be available to speak to people who wish to know what she went through and how she overcame.She had access to and adopted the 4 point TB cure mantra!

TB Poster final_Page_2

Developed with support from Lilly MDR-TB Partnership

WISH YOU ALL A HAPPY AND HEALTHY YEAR AHEAD!!

FROM ‘A’, A YOUNG 26-YEAR OLD, WHO HAS COME BACK TO LIVE LIFE WITH RENEWED VIGOUR AFTER BEING ON MDR-TB MEDICATION FOR OVER TWO YEARS!

If you wish to know more about A, mail me: bharathiksg@gmail.com

Bharathi Ghanashyam

 

Written by JournalistsAgainstTB

December 30, 2016 at 3:27 pm

Posted in TB and Media

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